Happy New Year Prayer Warriors,
Thanks for the prayers. We really need them. We just got back from the clinic. Erin's liver enzymes are still up but they said it would take a couple of weeks to get everything under control. Her other numbers looked good. Erin feels like she has been beat up with a baseball bat. Her skin is very sensitive and itchy. They are checking muscle enzymes to see if it is her skin or her muscles that is causing that feeling. They labeled it "Acute GVH" even though she is outside the 100 days that we were so concerned about. Please pray it all settles down quickly so she can get off of these steroids. The steroids keep her awake at night. Last night she was up til 3 a.m. That is no fun when your body is exhausted. They have added a sleeping pill to her bucket-o-pills. Hope it works. We are so thankful she still has energy to play and an appetite to eat. God is good. Thanks again for the prayers for her continued recovery. 2010 should be a great year!! Hope you all have a Happy New Year! We love you, janet
"I will give you a new heart and put a new spirit in you; I will remove from you your heart of stone and give you a heart of flesh. And I will put my Spirit in you and move you to follow my decrees and be careful to keep my laws. You will live in the land I gave your forefathers; you will be my people and I will be your God." Ezekiel 36:26-68
Let's start the New Year right!! Amen
Wednesday, December 30, 2009
Wednesday, December 23, 2009
1st weekly update
Merry Christmas Prayer Warriors,
I know it has been a long wait since our last conversation. This weekly update was hard for me to wait on too. We just got back from the clinic and they told Erin she has Graft vs. Host. She is itchy but no rash and her mouth is sensitive and dry. The real tell tale sign was that her liver enzymes are up. Graft vs Host on a small scale is not a bad thing because that means she is also getting graft vs. leukemia which is the whole point of having a transplant. Basically, since her liver sustained a "trauma" during her bout of VOD back in aug/sept, it has been trying to recover slowly. In the meantime, it hasn't been metabolizing her immunosuppressant drug very quickly. so they had her on a very small dose. Now that her liver is starting to recover, it is metabolizing her medicine faster and so the level has dropped enough to stir up the GVH response. All that to say, they are putting her on steroids and doubling her immunosuppressant to get everything stabilized for now. Of course, any news like this is hard to understand and have to deal with 2 days before Christmas. We praise God that He is in control as always!!! Please pray for Erin's liver to recover and do what it is supposed to do. Also please pray that Erin shakes off this news and is ready to Rock and Roll for Christmas! We also ask you to pray for our friend Megan who is also suffering from GVH at this time. Thanks as always for the prayers. We pray that you all have a blessed Christmas! love, janet
"And there were shepherds living out in the fields nearby, keeping watch over their flocks at night. An angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were terrified. But the angel said to them, "Do not be afraid. I bring you good news of great joy that will be for all the people. Today in the town of David a savior has been born to you; he is Christ the Lord. This will be a sign to you: You will find a baby wrapped in cloths and lying in a manger." Suddenly a great company of the heavenly host appeared with the angel, praising God and saying, "Glory to God in the highest, and on earth peace to men on whom his favor rests." Luke 2:8-14
I know it has been a long wait since our last conversation. This weekly update was hard for me to wait on too. We just got back from the clinic and they told Erin she has Graft vs. Host. She is itchy but no rash and her mouth is sensitive and dry. The real tell tale sign was that her liver enzymes are up. Graft vs Host on a small scale is not a bad thing because that means she is also getting graft vs. leukemia which is the whole point of having a transplant. Basically, since her liver sustained a "trauma" during her bout of VOD back in aug/sept, it has been trying to recover slowly. In the meantime, it hasn't been metabolizing her immunosuppressant drug very quickly. so they had her on a very small dose. Now that her liver is starting to recover, it is metabolizing her medicine faster and so the level has dropped enough to stir up the GVH response. All that to say, they are putting her on steroids and doubling her immunosuppressant to get everything stabilized for now. Of course, any news like this is hard to understand and have to deal with 2 days before Christmas. We praise God that He is in control as always!!! Please pray for Erin's liver to recover and do what it is supposed to do. Also please pray that Erin shakes off this news and is ready to Rock and Roll for Christmas! We also ask you to pray for our friend Megan who is also suffering from GVH at this time. Thanks as always for the prayers. We pray that you all have a blessed Christmas! love, janet
"And there were shepherds living out in the fields nearby, keeping watch over their flocks at night. An angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were terrified. But the angel said to them, "Do not be afraid. I bring you good news of great joy that will be for all the people. Today in the town of David a savior has been born to you; he is Christ the Lord. This will be a sign to you: You will find a baby wrapped in cloths and lying in a manger." Suddenly a great company of the heavenly host appeared with the angel, praising God and saying, "Glory to God in the highest, and on earth peace to men on whom his favor rests." Luke 2:8-14
Wednesday, December 16, 2009
Wed 9 days til Christmas
Hello Prayer Warriors,
Thanks for your prayers!! Erin is doing fine and so is Bill. We just got back from Bill's surgery and he did great. Good thing Erin feels better enough to help me with him. Isn't God's timing perfect that way! Amanda suggested I start blogging just once a week since things are so much better. Sounds like a plan. I will try to wean myself off. I am sort of co-dependent on this blog and your prayers. But isn't that the best blessing to be at this point in Erin's recovery!! Woo Hoo. Merry Christmas!! janet
"If you keep your feet from breaking the Sabbath and from doing as you please on my holy day, if you call the Lord's holy day honorable, and if you honor it by not going your own way and not doing as you please or speaking idle words, then you will find your joy in the Lord, and I will cause you to ride on the heights of the land and to feast on the inheritance of your father Jacob." The mouth of the Lord has spoken.
Thanks for your prayers!! Erin is doing fine and so is Bill. We just got back from Bill's surgery and he did great. Good thing Erin feels better enough to help me with him. Isn't God's timing perfect that way! Amanda suggested I start blogging just once a week since things are so much better. Sounds like a plan. I will try to wean myself off. I am sort of co-dependent on this blog and your prayers. But isn't that the best blessing to be at this point in Erin's recovery!! Woo Hoo. Merry Christmas!! janet
"If you keep your feet from breaking the Sabbath and from doing as you please on my holy day, if you call the Lord's holy day honorable, and if you honor it by not going your own way and not doing as you please or speaking idle words, then you will find your joy in the Lord, and I will cause you to ride on the heights of the land and to feast on the inheritance of your father Jacob." The mouth of the Lord has spoken.
Tuesday, December 15, 2009
Tues 10 days til Christmas
Blessings Prayer Warriors,
Thanks for the prayers. Erin is feeling fine today. She ended up using the bucket last night. I don't know if it was the salad she ate or the fact that I was bragging yesterday about her not using the bucket in a while. I think it was just a random thing, nothing big going on. But rest assured, I shall not say another word about the bucket. Erin's friend Jenna brought by some things full of corn and rice that one of her church members made for Erin. You microwave them to warm them up and they stay warm a long time so you can snuggle with them. Just putting it out there for the committee at large, for any objections before we let her use them. We got slammed on the electric blanket, so I want to be sure. I will use the microwave and run, as usual. I won't let her near it. How's that sound? Heaven knows I am trying everything to keep her warm and safe at the same time.
Bill's surgery got changed to 1:45 in case your prayers are time specific. Thanks in advance. blessings on your day, janet
"As a mother comforts her child, so will I comfort you; and you will be comforted over Jerusalem." Isaiah 66:13
Thanks for the prayers. Erin is feeling fine today. She ended up using the bucket last night. I don't know if it was the salad she ate or the fact that I was bragging yesterday about her not using the bucket in a while. I think it was just a random thing, nothing big going on. But rest assured, I shall not say another word about the bucket. Erin's friend Jenna brought by some things full of corn and rice that one of her church members made for Erin. You microwave them to warm them up and they stay warm a long time so you can snuggle with them. Just putting it out there for the committee at large, for any objections before we let her use them. We got slammed on the electric blanket, so I want to be sure. I will use the microwave and run, as usual. I won't let her near it. How's that sound? Heaven knows I am trying everything to keep her warm and safe at the same time.
Bill's surgery got changed to 1:45 in case your prayers are time specific. Thanks in advance. blessings on your day, janet
"As a mother comforts her child, so will I comfort you; and you will be comforted over Jerusalem." Isaiah 66:13
Monday, December 14, 2009
Monday - 11 days til Christmas
Hello Prayer Warriors,
Thanks for the prayers. Please add Bill to your list for this week, he is having foot surgery on Wed at 3:30. Erin is doing great, a little headache, a little stomach ache, but great comparatively speaking! We just took a trip to the mall. She says the mall misses her and the economy fell because she wasn't allowed to shop, so she is making up for lost time. Hope you are enjoying the Christmas Spirit. Blessings, janet
"One man pretends to be rich, yet has nothing; another pretends to be poor, yet has great wealth." Proverbs 13:7
That's a thinker!
Thanks for the prayers. Please add Bill to your list for this week, he is having foot surgery on Wed at 3:30. Erin is doing great, a little headache, a little stomach ache, but great comparatively speaking! We just took a trip to the mall. She says the mall misses her and the economy fell because she wasn't allowed to shop, so she is making up for lost time. Hope you are enjoying the Christmas Spirit. Blessings, janet
"One man pretends to be rich, yet has nothing; another pretends to be poor, yet has great wealth." Proverbs 13:7
That's a thinker!
Sunday, December 13, 2009
Sunday - 12 days til Christmas
Blessings Prayer Warriors,
Thanks for the prayers. Erin is doing well today. She is just spending the day under the warm blanket hiding from the cold dreary day outside. Hopefully tomorrow will be warmer so she can get out and about some more. There are always last minute shopping details to take care of and with school letting out in a week, this IS our last minute. We took our Christmas photo last night but Amanda and Kyle were otherwise engaged and missed it. So they got the boot from the annual photo. It is sorta sad but they are doing their own thing for Christmas photos, what with their own dog and everything. Feels like our census is low. The times, they are a-changing. hugs, Nostalgic in Dacula
"In those days Caesar Augustus issued a decree that a census should be taken of the entire Roman world. (This was the first census that took place while Quirinius was governor of Syria.) And everyone went to his own town to register. So Joseph also went up from the town of Nazareth in Galilee to Judea, to Bethlehem the town of David, because he belonged to the house and line of David. " Luke 2:1-4
Thanks for the prayers. Erin is doing well today. She is just spending the day under the warm blanket hiding from the cold dreary day outside. Hopefully tomorrow will be warmer so she can get out and about some more. There are always last minute shopping details to take care of and with school letting out in a week, this IS our last minute. We took our Christmas photo last night but Amanda and Kyle were otherwise engaged and missed it. So they got the boot from the annual photo. It is sorta sad but they are doing their own thing for Christmas photos, what with their own dog and everything. Feels like our census is low. The times, they are a-changing. hugs, Nostalgic in Dacula
"In those days Caesar Augustus issued a decree that a census should be taken of the entire Roman world. (This was the first census that took place while Quirinius was governor of Syria.) And everyone went to his own town to register. So Joseph also went up from the town of Nazareth in Galilee to Judea, to Bethlehem the town of David, because he belonged to the house and line of David. " Luke 2:1-4
Saturday, December 12, 2009
Sat- Just 13 days til Christmas
Hello Prayers Warriors,
Thanks for the prayers. Erin is doing well this morning. She is busy getting ready for Christmas. Aren't we all? We just need to remember how blessed we are to be able to freely celebrate God! Bill and Laura are off to get their swine flu shots at the mall. Not much else happening, thank the Good Lord!! Praise God from whom all blessings flow. hugs, janet
"As a prisoner for the Lord, then, I urge you to live a life worthy of the calling you have received. Be completely humble and gentle; be patient, bearing with one another in love. Make every effort to keep the unity of the Spirit through the bond of peace. There is one body and one Spirit - just as you were called to one hope when you were called = one Lord, one faith, one baptism; one God and Father of all, who is over all and through all and in all." Ephesians 4:1-6
Thanks for the prayers. Erin is doing well this morning. She is busy getting ready for Christmas. Aren't we all? We just need to remember how blessed we are to be able to freely celebrate God! Bill and Laura are off to get their swine flu shots at the mall. Not much else happening, thank the Good Lord!! Praise God from whom all blessings flow. hugs, janet
"As a prisoner for the Lord, then, I urge you to live a life worthy of the calling you have received. Be completely humble and gentle; be patient, bearing with one another in love. Make every effort to keep the unity of the Spirit through the bond of peace. There is one body and one Spirit - just as you were called to one hope when you were called = one Lord, one faith, one baptism; one God and Father of all, who is over all and through all and in all." Ephesians 4:1-6