Dear Prayer Warriors,
Thank you so much, I know I say it every day, but it is always true!! We couldn't make this journey without your daily support. Erin had another rough evening last evening. She tossed her smoothie and her pills a couple of times. Today is a new day though, praise God, and she is feeling o.k. so far. We just take it one hour at a time and so far, so good. Unfortunately, she had plans with friends yesterday that she had to cancel because of her stomach. She doesn't make many plans to see people, so I am always so disappointed for her when she can't do it. Again, it is just frosting on the cake to do the extras, but who doesn't like a little frosting?? Please continue to pray for her energy and stomach. We are on day +69 and excited to hit the 70s. These first 100 days are critical and we can't wait to have them behind us! blessings on your weekend, love, janet
I asked Erin if she had an idea for a scripture for today and she said, "Thou shall not barf!"
"Save me, O God, for the waters have come up to my neck....But I pray to you , O Lord, in the time of your favor; in your great love, O God, answer me with your sure salvation." Psalm 69: 1,13
Psalm 69 for day 69, how cool is that!!
Friday, October 23, 2009
Thursday, October 22, 2009
Thursday
Blessings Prayer Warriors,
Thanks for the prayers. Erin had a better night last night than the night before. She was so worn out by her previous 24 hours that she just slept and slept last night. We "nicely coerced" her into drinking a smoothie with protein powder in it to give her a boost. I think it helped. She hadn't eaten more than a couple of bites the last 3 days. Today she has continued to sleep and nap and lie down alot. It takes time to recover from a night like she had! We are hoping she perks up a bit because we have company coming for the weekend and we were hoping to drive up to see the leaves. I guess this is our "new normal" as they say. We take it one day at a time and do what we can with her energy level. We praise God that she is home and can enjoy the simple things, knowing everything else is icing on the cake. No wonder they said the recovery would be a year. Thanks for your continued prayers for energy and decreased stomach pain. One day at a time Sweet Jesus, that's all we're asking from you!
"The Lord said, 'Go out and stand on the mountain in the presence of the Lord, for the Lord is about to pass by.' Then a great and powerful wind tore the mountains apart and shattered the rocks before the Lord, but the Lord was not in the wind, After the wind there was an earthquake, but the Lord was not in the earthquake. After the earthquake came a fire, but the Lord was not in the fire. And after the fire came a gentle whisper." 1Kings 19:11-12
May you hear His whisper calling your name. Blessings, janet
Thanks for the prayers. Erin had a better night last night than the night before. She was so worn out by her previous 24 hours that she just slept and slept last night. We "nicely coerced" her into drinking a smoothie with protein powder in it to give her a boost. I think it helped. She hadn't eaten more than a couple of bites the last 3 days. Today she has continued to sleep and nap and lie down alot. It takes time to recover from a night like she had! We are hoping she perks up a bit because we have company coming for the weekend and we were hoping to drive up to see the leaves. I guess this is our "new normal" as they say. We take it one day at a time and do what we can with her energy level. We praise God that she is home and can enjoy the simple things, knowing everything else is icing on the cake. No wonder they said the recovery would be a year. Thanks for your continued prayers for energy and decreased stomach pain. One day at a time Sweet Jesus, that's all we're asking from you!
"The Lord said, 'Go out and stand on the mountain in the presence of the Lord, for the Lord is about to pass by.' Then a great and powerful wind tore the mountains apart and shattered the rocks before the Lord, but the Lord was not in the wind, After the wind there was an earthquake, but the Lord was not in the earthquake. After the earthquake came a fire, but the Lord was not in the fire. And after the fire came a gentle whisper." 1Kings 19:11-12
May you hear His whisper calling your name. Blessings, janet
Wednesday, October 21, 2009
Long day and night
Blessings Prayer Warriors,
Erin had a very rough night, vomiting 10 times. We gave her extra IV fluids in the night to keep her hydrated until we could get to the clinic this morning. They checked her out and gave her some IV meds and more fluids, hopefully breaking the cycle of nausea.
I am praising God for His pointed confirmation of my decision to stop working. This year of recovery will apparently have sudden ups and downs and it is easier to just be here 24/7. It takes the stress off of the whole family, especially me.
Speaking of family, my Dad spent 8 hours in the ER yesterday. He swallowed something that stuck in his throat and he couldn't get it to move. He couldn't cough it up and he couldn't swallow it down. After hours of waiting for his turn in the ER, the food had finally moved before he was seen and he didn't have to have any invasive procedure! Thank you Lord! Sometimes waiting is a good thing.
Well, that's all the news for today. Thanks as always for the prayers!! love, janet
"Yet the Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him!" Isaiah 30:18 AMEN
Erin had a very rough night, vomiting 10 times. We gave her extra IV fluids in the night to keep her hydrated until we could get to the clinic this morning. They checked her out and gave her some IV meds and more fluids, hopefully breaking the cycle of nausea.
I am praising God for His pointed confirmation of my decision to stop working. This year of recovery will apparently have sudden ups and downs and it is easier to just be here 24/7. It takes the stress off of the whole family, especially me.
Speaking of family, my Dad spent 8 hours in the ER yesterday. He swallowed something that stuck in his throat and he couldn't get it to move. He couldn't cough it up and he couldn't swallow it down. After hours of waiting for his turn in the ER, the food had finally moved before he was seen and he didn't have to have any invasive procedure! Thank you Lord! Sometimes waiting is a good thing.
Well, that's all the news for today. Thanks as always for the prayers!! love, janet
"Yet the Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him!" Isaiah 30:18 AMEN
Tuesday, October 20, 2009
Tues 10/20
Dear Prayer Warriors,
Thank you so much for your prayers. Erin is having a tired and yucky day again so far. She has managed to walk on the treadmill the last 2 evenings. She just usually starts the day slowly. Hopefully she will perk up here shortly. Please pray for energy and decreased stomach pain. Yes, she still has stomach pain. Just enough to make it hard for her to eat much and enough to keep her "bucket-of-opportunity" close at hand.
The big news today is that I quit my job. I worked the weekend and got really scared thinking about the potential for germs. Erin is so severely immune compromised that the slightest germ to you and me could quickly put her in the hospital, not to mention the big germs out there. I asked Human Resources if they had anything non-patient related that I could do, but I haven't heard back yet. If they do, then maybe I will work part-time. Who knows. God has provided beautifully every time I have taken time off to care for Erin and I know He will see us through this time as well. Like my friend Ramona said, God longs for us to be 100% dependent on Him. Well, we are, and we are confident He will sustain us and bless us for our commitment to our child and to Him. Blessings on you for your prayers, janet
"Surely God is my help; the Lord is the one who sustains me." Psalm 54:4
Thank you so much for your prayers. Erin is having a tired and yucky day again so far. She has managed to walk on the treadmill the last 2 evenings. She just usually starts the day slowly. Hopefully she will perk up here shortly. Please pray for energy and decreased stomach pain. Yes, she still has stomach pain. Just enough to make it hard for her to eat much and enough to keep her "bucket-of-opportunity" close at hand.
The big news today is that I quit my job. I worked the weekend and got really scared thinking about the potential for germs. Erin is so severely immune compromised that the slightest germ to you and me could quickly put her in the hospital, not to mention the big germs out there. I asked Human Resources if they had anything non-patient related that I could do, but I haven't heard back yet. If they do, then maybe I will work part-time. Who knows. God has provided beautifully every time I have taken time off to care for Erin and I know He will see us through this time as well. Like my friend Ramona said, God longs for us to be 100% dependent on Him. Well, we are, and we are confident He will sustain us and bless us for our commitment to our child and to Him. Blessings on you for your prayers, janet
"Surely God is my help; the Lord is the one who sustains me." Psalm 54:4
Monday, October 19, 2009
Monday +65
Hello Prayer Warriors, Thanks for your prayers!! We just got back from the clinic. Erin's labs look good, they are stopping her steroid today so they said she might have an adjustment to make as far as aches and pains. Also, they are stopping the IV antiviral and starting her pill form again. They want to keep the IV fluids going one more week. So there are always slight adjustments on her meds. The Dr urged Erin to get back on that treadmill to keep up her strength. Erin feels sorta tired and yucky today. No energy. So you know that is our prayer request, that she would get some energy and feel better overall. Thank you for continuing this long long journey with us. I know we keep asking for prayers but it is definitely a ongoing process and we appreciate you hanging in with us for the long haul. God will provide us with the endurance and I know you all will help with the encouragement along the way. Bless you all, janet
"See to it, brothers, that none of you has a sinful , unbelieving heart that turns away from the living God. But encourage one another daily, as long as it is called Today, so that none of you may be hardened by sin's deceitfulness. We have come to share in Christ if we hold firmly till the end the confidence we had at first." Hebrews 3:12-14
"See to it, brothers, that none of you has a sinful , unbelieving heart that turns away from the living God. But encourage one another daily, as long as it is called Today, so that none of you may be hardened by sin's deceitfulness. We have come to share in Christ if we hold firmly till the end the confidence we had at first." Hebrews 3:12-14
Sunday, October 18, 2009
Sunday - Day +64
Hi Friends....Bill here again,
What a beautiful Fall Sunday! Erin is feeling better today but very tired. She slept until noon and really only got up then after some prodding on my part. The discomfort yesterday afternoon and evening seemed to settle down after getting her IV meds last night. We are trying to stretch the time between pain meds and I think we may have stretched a little too far yesterday.
Janet survived her first real day back at work yesterday (albeit somewhat shortened which was a blessing) and is back at it today. Please continue to keep her in your prayers as I know it is weighing heavy on her heart to be away from Erin and to be out in the world of germs which she worries about bringing home especially in this heightened Flu season. As it turns out, just as I was getting ready to post this, Janet got home early from work....must have been another slow day in L&D and we are grateful for God's continued blessings!!
Nothing else to report really. We are at day 64 after the transplant and the next major milestone is the bone marrow biopsy around day 100 when we will find out how the new marrow is doing and if any leukemia is present. Thanks for checking in and for continuing to keep Erin in your prayers!
Blessings.....
Bill
"This is the day the LORD has made; let us rejoice and be glad in it."
- Psalms 118:24
What a beautiful Fall Sunday! Erin is feeling better today but very tired. She slept until noon and really only got up then after some prodding on my part. The discomfort yesterday afternoon and evening seemed to settle down after getting her IV meds last night. We are trying to stretch the time between pain meds and I think we may have stretched a little too far yesterday.
Janet survived her first real day back at work yesterday (albeit somewhat shortened which was a blessing) and is back at it today. Please continue to keep her in your prayers as I know it is weighing heavy on her heart to be away from Erin and to be out in the world of germs which she worries about bringing home especially in this heightened Flu season. As it turns out, just as I was getting ready to post this, Janet got home early from work....must have been another slow day in L&D and we are grateful for God's continued blessings!!
Nothing else to report really. We are at day 64 after the transplant and the next major milestone is the bone marrow biopsy around day 100 when we will find out how the new marrow is doing and if any leukemia is present. Thanks for checking in and for continuing to keep Erin in your prayers!
Blessings.....
Bill
"This is the day the LORD has made; let us rejoice and be glad in it."
- Psalms 118:24
Saturday, October 17, 2009
Peaceful Saturday
Hello Friends....It's Bill here,
It's been a fairly quiet Saturday. Laura came home to hang out and watch the Dawgs take on Vandy. Janet initially got called off from work this morning but then was called in around 11:00 a.m. We all ran over to see Amanda and Kyle's house decorating changes and new backyard fence. Erin has been doing pretty well although she started having a little stomach pain this afternoon and just had a bout of nausea. We continue to pray for relief for Erin from stomach pain and nausea. [I'm wondering if the ugliness of the first half of the game contributed as I wasn't feeling all that great either. Oh well...an ugly win beats a close loss in our book! (Sorry Davis!)]
The only other news to report is that Erin's hair is starting to come back in which is a big praise! I think we are all anxious to see if there will be any significant changes in color or curliness.
Thanks for checking in and for the awesome prayer support! We are blessed to have you with us on this journey!! We pray God's blessings and peace for each of you this day and always.
- Bill
"Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you." - 2 Thessalonians 3:16
It's been a fairly quiet Saturday. Laura came home to hang out and watch the Dawgs take on Vandy. Janet initially got called off from work this morning but then was called in around 11:00 a.m. We all ran over to see Amanda and Kyle's house decorating changes and new backyard fence. Erin has been doing pretty well although she started having a little stomach pain this afternoon and just had a bout of nausea. We continue to pray for relief for Erin from stomach pain and nausea. [I'm wondering if the ugliness of the first half of the game contributed as I wasn't feeling all that great either. Oh well...an ugly win beats a close loss in our book! (Sorry Davis!)]
The only other news to report is that Erin's hair is starting to come back in which is a big praise! I think we are all anxious to see if there will be any significant changes in color or curliness.
Thanks for checking in and for the awesome prayer support! We are blessed to have you with us on this journey!! We pray God's blessings and peace for each of you this day and always.
- Bill
"Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you." - 2 Thessalonians 3:16