Hello Prayer Warriors,
Thanks for your prayers. I wish I had better news for today, but Erin ended last night with vomiting and started today with vomiting again. It is so discouraging! She is so weak. We are scheduled at the Clinic on Wednesday this week, so hopefully they will have ideas for us. I am really considering asking for IV food again. She is just not getting enough nutrition. Please pray for decreased nausea and increased energy and endurance. Love, janet
Psalm 27: 1-3
"The Lord is my light and my salvation;
Whom shall I fear?
The Lord is the strength of my life;
Of whom shall I be afraid?
When the wicked came against me
To eat up my flesh,
My enemies and foes,
They stumbled and fell.
Though an army may encamp against me,
My heart shall not fear;
Though war may rise against me,
In this I will be confident."
Monday, October 26, 2009
Sunday, October 25, 2009
Sunday - Day 71
Blessings on your Sabbath, Erin is having an okay day. A little nausea and not much food but okay. She struggled trying to get much to stay down. It is a vicious cycle/catch 22; meds help the pain and nausea; but if you can't take with food, they hit the bucket. If you eat, it produces nausea and pain which lead to more medicine which makes you sleepy so you don't want to eat. Basically, her stomach is waging war all the time. She tries to get a little energy in but not give her stomach ammunition if you know what I mean. Again, we just praise God she is holding her own and not requiring hospitalization.
We covet your prayers. Love, janet
Mark 12: 28-31
"'Which commandment is first of all?' Jesus answered, 'The first is, "Hear, O Israel: the Lord our God is the only Lord; love the Lord your God with all your heart, with all your soul, and all your mind, and with all your strength." The second is this: "Love your neighbor as yourself." There is no other commandment greater than these.'"
We covet your prayers. Love, janet
Mark 12: 28-31
"'Which commandment is first of all?' Jesus answered, 'The first is, "Hear, O Israel: the Lord our God is the only Lord; love the Lord your God with all your heart, with all your soul, and all your mind, and with all your strength." The second is this: "Love your neighbor as yourself." There is no other commandment greater than these.'"
Saturday, October 24, 2009
Good day!
Hello Prayer Warriors,
Erin had a very good day yesterday. Beautiful leaves, lots of games, family fun. Praise God for a good day, she really needed one. Hoping for another good one today. Please pray for energy to enjoy her good days.
Blessings, janet
"Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." Matt. 11:28-30
Erin had a very good day yesterday. Beautiful leaves, lots of games, family fun. Praise God for a good day, she really needed one. Hoping for another good one today. Please pray for energy to enjoy her good days.
Blessings, janet
"Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." Matt. 11:28-30
Friday, October 23, 2009
Friday 10/23
Dear Prayer Warriors,
Thank you so much, I know I say it every day, but it is always true!! We couldn't make this journey without your daily support. Erin had another rough evening last evening. She tossed her smoothie and her pills a couple of times. Today is a new day though, praise God, and she is feeling o.k. so far. We just take it one hour at a time and so far, so good. Unfortunately, she had plans with friends yesterday that she had to cancel because of her stomach. She doesn't make many plans to see people, so I am always so disappointed for her when she can't do it. Again, it is just frosting on the cake to do the extras, but who doesn't like a little frosting?? Please continue to pray for her energy and stomach. We are on day +69 and excited to hit the 70s. These first 100 days are critical and we can't wait to have them behind us! blessings on your weekend, love, janet
I asked Erin if she had an idea for a scripture for today and she said, "Thou shall not barf!"
"Save me, O God, for the waters have come up to my neck....But I pray to you , O Lord, in the time of your favor; in your great love, O God, answer me with your sure salvation." Psalm 69: 1,13
Psalm 69 for day 69, how cool is that!!
Thank you so much, I know I say it every day, but it is always true!! We couldn't make this journey without your daily support. Erin had another rough evening last evening. She tossed her smoothie and her pills a couple of times. Today is a new day though, praise God, and she is feeling o.k. so far. We just take it one hour at a time and so far, so good. Unfortunately, she had plans with friends yesterday that she had to cancel because of her stomach. She doesn't make many plans to see people, so I am always so disappointed for her when she can't do it. Again, it is just frosting on the cake to do the extras, but who doesn't like a little frosting?? Please continue to pray for her energy and stomach. We are on day +69 and excited to hit the 70s. These first 100 days are critical and we can't wait to have them behind us! blessings on your weekend, love, janet
I asked Erin if she had an idea for a scripture for today and she said, "Thou shall not barf!"
"Save me, O God, for the waters have come up to my neck....But I pray to you , O Lord, in the time of your favor; in your great love, O God, answer me with your sure salvation." Psalm 69: 1,13
Psalm 69 for day 69, how cool is that!!
Thursday, October 22, 2009
Thursday
Blessings Prayer Warriors,
Thanks for the prayers. Erin had a better night last night than the night before. She was so worn out by her previous 24 hours that she just slept and slept last night. We "nicely coerced" her into drinking a smoothie with protein powder in it to give her a boost. I think it helped. She hadn't eaten more than a couple of bites the last 3 days. Today she has continued to sleep and nap and lie down alot. It takes time to recover from a night like she had! We are hoping she perks up a bit because we have company coming for the weekend and we were hoping to drive up to see the leaves. I guess this is our "new normal" as they say. We take it one day at a time and do what we can with her energy level. We praise God that she is home and can enjoy the simple things, knowing everything else is icing on the cake. No wonder they said the recovery would be a year. Thanks for your continued prayers for energy and decreased stomach pain. One day at a time Sweet Jesus, that's all we're asking from you!
"The Lord said, 'Go out and stand on the mountain in the presence of the Lord, for the Lord is about to pass by.' Then a great and powerful wind tore the mountains apart and shattered the rocks before the Lord, but the Lord was not in the wind, After the wind there was an earthquake, but the Lord was not in the earthquake. After the earthquake came a fire, but the Lord was not in the fire. And after the fire came a gentle whisper." 1Kings 19:11-12
May you hear His whisper calling your name. Blessings, janet
Thanks for the prayers. Erin had a better night last night than the night before. She was so worn out by her previous 24 hours that she just slept and slept last night. We "nicely coerced" her into drinking a smoothie with protein powder in it to give her a boost. I think it helped. She hadn't eaten more than a couple of bites the last 3 days. Today she has continued to sleep and nap and lie down alot. It takes time to recover from a night like she had! We are hoping she perks up a bit because we have company coming for the weekend and we were hoping to drive up to see the leaves. I guess this is our "new normal" as they say. We take it one day at a time and do what we can with her energy level. We praise God that she is home and can enjoy the simple things, knowing everything else is icing on the cake. No wonder they said the recovery would be a year. Thanks for your continued prayers for energy and decreased stomach pain. One day at a time Sweet Jesus, that's all we're asking from you!
"The Lord said, 'Go out and stand on the mountain in the presence of the Lord, for the Lord is about to pass by.' Then a great and powerful wind tore the mountains apart and shattered the rocks before the Lord, but the Lord was not in the wind, After the wind there was an earthquake, but the Lord was not in the earthquake. After the earthquake came a fire, but the Lord was not in the fire. And after the fire came a gentle whisper." 1Kings 19:11-12
May you hear His whisper calling your name. Blessings, janet
Wednesday, October 21, 2009
Long day and night
Blessings Prayer Warriors,
Erin had a very rough night, vomiting 10 times. We gave her extra IV fluids in the night to keep her hydrated until we could get to the clinic this morning. They checked her out and gave her some IV meds and more fluids, hopefully breaking the cycle of nausea.
I am praising God for His pointed confirmation of my decision to stop working. This year of recovery will apparently have sudden ups and downs and it is easier to just be here 24/7. It takes the stress off of the whole family, especially me.
Speaking of family, my Dad spent 8 hours in the ER yesterday. He swallowed something that stuck in his throat and he couldn't get it to move. He couldn't cough it up and he couldn't swallow it down. After hours of waiting for his turn in the ER, the food had finally moved before he was seen and he didn't have to have any invasive procedure! Thank you Lord! Sometimes waiting is a good thing.
Well, that's all the news for today. Thanks as always for the prayers!! love, janet
"Yet the Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him!" Isaiah 30:18 AMEN
Erin had a very rough night, vomiting 10 times. We gave her extra IV fluids in the night to keep her hydrated until we could get to the clinic this morning. They checked her out and gave her some IV meds and more fluids, hopefully breaking the cycle of nausea.
I am praising God for His pointed confirmation of my decision to stop working. This year of recovery will apparently have sudden ups and downs and it is easier to just be here 24/7. It takes the stress off of the whole family, especially me.
Speaking of family, my Dad spent 8 hours in the ER yesterday. He swallowed something that stuck in his throat and he couldn't get it to move. He couldn't cough it up and he couldn't swallow it down. After hours of waiting for his turn in the ER, the food had finally moved before he was seen and he didn't have to have any invasive procedure! Thank you Lord! Sometimes waiting is a good thing.
Well, that's all the news for today. Thanks as always for the prayers!! love, janet
"Yet the Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him!" Isaiah 30:18 AMEN
Tuesday, October 20, 2009
Tues 10/20
Dear Prayer Warriors,
Thank you so much for your prayers. Erin is having a tired and yucky day again so far. She has managed to walk on the treadmill the last 2 evenings. She just usually starts the day slowly. Hopefully she will perk up here shortly. Please pray for energy and decreased stomach pain. Yes, she still has stomach pain. Just enough to make it hard for her to eat much and enough to keep her "bucket-of-opportunity" close at hand.
The big news today is that I quit my job. I worked the weekend and got really scared thinking about the potential for germs. Erin is so severely immune compromised that the slightest germ to you and me could quickly put her in the hospital, not to mention the big germs out there. I asked Human Resources if they had anything non-patient related that I could do, but I haven't heard back yet. If they do, then maybe I will work part-time. Who knows. God has provided beautifully every time I have taken time off to care for Erin and I know He will see us through this time as well. Like my friend Ramona said, God longs for us to be 100% dependent on Him. Well, we are, and we are confident He will sustain us and bless us for our commitment to our child and to Him. Blessings on you for your prayers, janet
"Surely God is my help; the Lord is the one who sustains me." Psalm 54:4
Thank you so much for your prayers. Erin is having a tired and yucky day again so far. She has managed to walk on the treadmill the last 2 evenings. She just usually starts the day slowly. Hopefully she will perk up here shortly. Please pray for energy and decreased stomach pain. Yes, she still has stomach pain. Just enough to make it hard for her to eat much and enough to keep her "bucket-of-opportunity" close at hand.
The big news today is that I quit my job. I worked the weekend and got really scared thinking about the potential for germs. Erin is so severely immune compromised that the slightest germ to you and me could quickly put her in the hospital, not to mention the big germs out there. I asked Human Resources if they had anything non-patient related that I could do, but I haven't heard back yet. If they do, then maybe I will work part-time. Who knows. God has provided beautifully every time I have taken time off to care for Erin and I know He will see us through this time as well. Like my friend Ramona said, God longs for us to be 100% dependent on Him. Well, we are, and we are confident He will sustain us and bless us for our commitment to our child and to Him. Blessings on you for your prayers, janet
"Surely God is my help; the Lord is the one who sustains me." Psalm 54:4