Long Day

Today was a long day at the clinic. Erin had a 10 a.m. appt and we just got home at 5:30. She needed platelets but that's all. We got the info on the biopsy and were disappointed to hear that itwas not clear yet. They will repeat the biopsy in a couple of weeks when her counts come back up. Please pray hard that the leukemia is again in remission by that time or Erin will have to go thru another round of chemo before the transplant. I asked if the chemo was still working now and might clear up the remaining cells before the next biopsy and the PA said he didn't know. We need all you prayer warriors to keep up the dialog with the Great Physician and help us petition for another miracle!
Erin is feeling o.k. today, just worn out from a very long day at the clinic.
Blessings on you, janet

"Hear O Lord, and asnwer me, for I am poor and needy. Guard my life, for I am devoted to you. You are my God; save your servant who trusts in you. Have mercy on me, O Lord, for I call to you all day long. Bring joy to your servant, for to you, O Lord, I lift up my soul." Psalm 86:1-4

home again

Blessings on you for your prayers! Erin got home yesterday about 1 p.m. and felt great all afternoon. She woke up feeling good but is now down with stomach pain after her bucket of pills. She managed to beat us all at cards first though! I got a surprise this afternoon. Amanda and Kyle decorated our bathroom with scriptures some of you sent in to encourage us. It is wonderful and I needed it so much. Thank you all for the lovely scriptures! God is so generous to give us such caring friends and family. Wow, I am overwhelmed!
"I thank God every time I remember you...And this is my prayer; that your love may abound more and more in knowledge and depth of insight, so that you may be able to discern what is best and may be pure and blameless until the day of Christ, filled with the fruit of righteousness that comes through Jesus Christ--to the glory and praise of God." Philippians 1:1,9-11
Thanks again for the love, janet

Waiting to go home again

Praising the Lord for a beautiful morning and the opportunity to go home again. Erin just has to prove she can take her pills and hold them down. She walked 4 laps yesterday after the biopsy. She only did that because they told her she might get to go home last night if she walked. Well, as always the left hand and the right don't always have the same info. So, Erin had another long night in here. The transplant Doc came by last night and told us they are very happy with the donor selected. They can only tell us their gender, age and if they are local. Unfortunately, she didn't know that info last night but she did know that the person is A+ blood type, so Erin won't have to convert her type. And you know she is happy being A+ because she has always strived for A+s in school. She identifies with her blood type!! She also said there are 10 markers on the cell and this donor matches all 10 so that is awesome!! They hope to get the bone marrow biopsy results today and if all is neg, we will get the donor going with further testing, hoping to do the transplant in a month. Everything is up in the air until the donor is ready. Please pray that the donor is ready and willing and HEALTHY!! Praising God for people who are willing to give such an amazing gift!!

"Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Therefore, as we have opportunity, let us do good to all people, especially to those who belong to the family of believers." Galatians 6:9-10

Blessings on all of you for continuing to pray for Erin!! May your harvest be plentiful!! love, janet

Yeah for Steroids!

Praising the Good Lord, We are so thankful Erin is feeling a lot better today. They started her steroids (always the last choice for nausea control) around 8 p.m. and by 10:30 she was hungry. She ate pears, peanut better and peas. She slept well and woke hungry again. No nausea today. Then the PA came in a said we have to have a bone marrow biopsy today. Bummer. The one day she feels better they want to do that!! We are hoping they can put it off because the first Dr said 21 days and now this one says 14 days. Who to believe?? Besides, tomorrow is 14 days, not today! Grrrr. Anyone else confused??
Another praise is that her blood cultures came back negative. Please pray that the bone marrow is easy and comes back negative. That will set the stage for the transplant. Thanks for the nausea prayers, God is faithful!! We are so grateful to have so many prayer warriors lifting Erin's name before the throne!! Blessings on you all, janet

"Therefore, since we have a great high priest who has gone through the heavens, Jesus the Son of God, let us hold firmly to the faith we profess...Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need." Hebrews 4:14,16

CT clear

Update for today. Thanks for the prayers. The CT results are clear which is a huge praise!! Now we are working on getting her pain and nausea under control. God is in control, we just have to be patient. Keep praying, hugs, janet

Roller Coaster

Hi guys.....Bill here,

Well, the last 24 hours have been up and down. Erin slept until noon yesterday after the long night in the ER. When she woke up, she was so brave to try to get her bucket of pills down and the dreaded yuckee Posi (anti-fungal) and shortly afterward threw it all up. By late afternoon they had gotten the nausea back under control and she ate a pretty good dinner and was able to keep it down. Last night she got up and got a little dizzy/light-headed and then got a bad headache. They gave her a second transfusion of platelets last night. On a lighter note, one of our favorite nurses from the sixth floor came up this morning to tell Erin that she had a room ready for her downstairs "where she could be with her friends". Our other favorite nurse who had moved up to the 7th floor was "fighting" over Erin to keep her on 7E. They have all been so good to us and I know Erin appreciates them so much!

This morning after the second transfusion, her platelets are up a bit from <4 to 25 but she is still having a slight nosebleed. The PA thinks the headache may be mostly a sinus type issue but the doctors ordered a CAT scan just to make sure there is no bleeding in her brain. They just took her down to radiology. Our prayer request this morning is for Erin's headache to subside, for clear CT results with no hemorrhaging in her brain, and for her to be able to recover comfortably at home. We are hoping that she will be able to go back home tomorrow if all goes well.

"Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort,who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. For just as the sufferings of Christ flow over into our lives, so also through Christ our comfort overflows." - 2 Corinthians 1:3-5

Thanks for continuing to hold Erin up in prayer and for your tremendous support!

Blessings.....Bill

Back in/Fever

Thanks for the prayers. We have a new one to add to the list. Erin came down with a fever last night. And when your counts are zero, fevers are serious. So we came to the ER last night about 1030 and got admitted, Unfortunately we had to stay in the ER for 4 hours because they said they didn't have a room for us. No matter how hard they try, ERs are full of germs!! Yikes! We finally got to a room at 3 a.m. Her platelets were less than 4. Way too low!! It figures since she was having some nosebleeds. We thought we could wait til our Sunday appt but it was a good thing we didn't have to. She got platelets last night and may need more tomorrow. We are in E701 but hopefully only for a couple of days. Her mucositis is kicking in and her stomach is really painful so it is hard for her to eat or take her bucket of pills. Please pray for reduced pain, ability to eat, encouragement to face more hospital time. It was so nice to be home for 2 days but it makes it that much more of a bummer to come back when she was just settling in to her own bed again. I praise God for the intricate body He has given us that can warn us when things aren't right. And for the knowledge He has given the Docs to treat the symptoms. Please pray that the Lord gives our Docs wisdom and our nurses skill and compassion. Blessings on your Sabbath and thanks again for the prayers! janet

“In that day you will say: "Give thanks to the LORD, call on his name; make known among the nations what he has done, and proclaim that his name is exalted.”- Isaiah 12:4